Tubes off!!

Just by day, but my oxygen tubing can come off. Regular readers will know that this is a BIG DEAL. I had a good download overnight - actually I slept through almost all of the night, which seems to make M&D very happy, but a bit nervous that I'm getting enough food. They weighed me again today and I'm now 4.14kgs so still gaining weight well - so no worries on that score.

NO TUBES !!!!!

Mum switched the noisy oxygen concentrator off as soon as she got the news - before she even took the tubes from my nose! And I was very happy. Which I showed by crying for most of the day.

A rare quiet moment - in the 'happy chair'

And when Daddy came home from work, he was so excited he span me round and round because we didn't get tangled up.

I like snuggles

And now it's night again so the tubes are back in and the machine is back on - but the end is in sight.

Hugs to all,
Arthur x