I've had a change of address. Just when we'd all given up on my moving to St Thomas' - I got moved. So I have a fabulous new room with one of London's finest views across the Thames to the Houses of Parliament. And I'm now a ten minute walk from home. This is all good.
|"One day, son, all this will be yours"|
I have tried to feed from Mum a total of 3 times. I have succeeded once. I have tried bottle feeding about 4 times - the first put me back in HDU and the subsequent attempts have been mixed at best.
I tried again today. And I desatted to 30%, and my heart rate dropped to 80 bpm and I turned blue. And the nice nurses at St Thomas' said "Oh". And popped me back in my cot and stuck me on oxygen. And I have had trouble keeping my oxygen saturations up all day. So they kept me on Oxygen, and turned it up, and up and up. And I coped well.
|Having a little try at the bottle|
And Chelsea said I had to lie prone (on my tummy) or left lateral (on my side) to prevent my reflux. And St Thomas' say I have to lie on my back to prevent cot death. And I'm adaptable.
And no-one has done anything wrong. As Mummy points out, if you gather 3 radiologists you'll get 4 different reports on the same image. Neonatology is no different. But it's very confusing when you're small.
I filled four nappies in under one hour out of sheer frustration.
|After several changes of outfit!|
|"Not more tests"|
Listen - it will all be fine I'm sure. But I was alarmed to hear I may be going home on oxygen and that it may be my PDA not my reflux which is making me drop my saturations. I'm not sure I'm bothered what the answer is, but when you're very small, clarity is important.
So more tests tomorrow. And then we'll find out where I am after the big consultant ward round on Monday.
In the meantime - I'll do my best to stay out of trouble!
|Spring Wisteria on Mum and Dad's house - to cheer us all up.|