Well hello peeps,
Funny sort of day today. No more blood in the poos so they've restarted the food - really slowly at first - but it's not caused any problems and my poo today was completely normal - that means super smelly, but no blood.
Good news - I spent the whole day just breathing air - no oxygen. And no desats or bradys. So it seems that it really is only the reflux that is causing me breathing problems.
More good news - I've managed to put on weight despite the diet - so most of me is working just fine!
And I made Mum and Dad very happy by behaving like a proper baby - see the video:
Love to all,